Lived experience

Speak to someone who has been through it

Sometimes the thing you need is not another page. It is a conversation with a person who has already walked this path.

Leave your name and how to reach you. You will hear back first, to check the conversation is right for both of you. Nothing you write here is published, and this is not medical advice.

How this works

This is not a public list of patients, and it is not an automatic match. Every request is read. If a conversation looks right, you will be introduced. If it does not, you will still hear back.

A conversation with another patient is one person's experience. It is not a substitute for your own medical team.

Who are you in this?

I am considering gene therapy
My child is considering gene therapy
Someone close to me is going through it
I am a healthcare professional

Would you like to speak to a male patient or a female patient?

A male patient
A female patient
No preference

This is only a preference. It will be matched if possible, but that cannot be promised.

Your name

Email address

Phone number

Optional. A call is often easier than email.

Anything you would like to add

You do not have to share medical details. A few words about where you are in the journey is enough.

I am 18 or overI understand this is not medical advice, and I am happy to be contacted about a possible conversation.

What you send is only used to arrange a possible conversation. It is not published. How these details are used

Would you like to share your experience instead? Share your experience