Parent experiences
From parents of a child or teenager who had gene therapy. Consenting on someone else's behalf, the isolation weeks, and watching them recover.
Patients own their own words. No one has permission to copy an experience from this site and use it elsewhere. Whose words these are
Have you lived with this?
No one has shared an experience of this yet. If you have been through it, as a patient, a parent, a partner, a sibling, a friend, or a carer, your account would help the person reading this page next.