Témoignages

L'expérience d'une personne, pas un avis médical.

Que · Beta thalassaemia · 23 ans au moment du traitement

My experience with gene therapy has been life-changing, and I’m incredibly grateful I had the opportunity to go through it. The treatment was difficult at times, particularly the chemotherapy and recovery, but today I’m able to live a full and active life. I love hiking and being in the mountains, and I don’t take being able to do those things for granted. If I could change one thing, it would be the timing. Knowing what I know now about the long-term effects of chemotherapy, I wish I had gone through treatment after settling down and starting a family. That isn’t a regret about gene therapy itself. I remain extremely grateful for the treatment and what it has given me. There were difficult parts and lasting consequences, but I’m grateful to be where I am today and able to enjoy life, travel, hike and climb mountains.

Rédigé par une personne qui décrit sa propre vie. Ce ne sont pas des recommandations médicales et cela n'a pas été relu comme telles.

Les mots des patients leur appartiennent. Personne n'a la permission de copier une expérience de ce site et de l'utiliser ailleurs. À qui appartiennent ces mots